The Genetics and Public Policy Center is supported by The Pew Charitable Trusts, with research funding from the National Human Genome Research Institute, the U.S. Department of Veterans Affairs, and Eli Lilly and Company.
The Center was established in 2002 with $10 million in funding from The Pew Charitable Trusts; its first Pew-funded project was the Reproductive Genetics Initiative. In 2005 the Center received a $3 million grant from Pew to launch a new initiative on genetic testing quality.
From 2006 through 2008, the Center conducted a $2 million research project funded by the National Human Genome Research Institute, "Making Every Voice Count: Public Consultation on Genetics, Environment, and Health." The Center also is conducting a similar engagement project for the U.S. Department of Veterans Affairs focused on its Genomic Medicine Program. In 2007 Genetic Alliance partnered with the Center on a three-year project funded by the Health Resources and Services Administration to help assess parents' attitudes and educational needs surrounding newborn screening.
In 2008 the Center received a $110,000 grant from Eli Lilly and Company to research the current regulatory process for pharmacogenetic drugs and devices, identify impediments to pharmacogenetic innovation and adoption by health care providers, and propose regulatory reforms.
Last updated 11/2008