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| Genetic Information Nondiscrimination Act (GINA) |
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WHAT'S NEW |
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President Bush signed the Genetic Information Nondiscrimination Act (GINA) of 2008 into law on May 21, 2008. The law makes it illegal for health insurers or employers to discriminate against individuals based on their genetic information.
This site aims to help patients, health care providers, insurers, and employers understand their rights and obligations under the new law. In addition to providing information about the protections afforded under the law, the site will house updates on how federal and state regulators are implementing the law. Members of the public are encouraged to email Center staff with questions, which will be compiled into a frequently-asked-questions Web page.
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On October 10, 2008, the United States Departments of Labor, Health and
Human Services, and Treasury issued a Request for Information (RFI) seeking
input on a range of issues related to the Genetic Information Nondiscrimination
Act of 2008. These agencies, along with the Equal Employment Opportunity
Commission, are in the process of writing federal regulations to implement the
new law. The current RFI concerns Title I of the new law, on health insurance.
The Genetics and Public Policy Center, Georgetown University Health Policy
Institute, and the National Workrights Institute have collaborated to submit comprehensive analysis and comments in response to the RFI.
Responses were due December 9.
Pending Regulations:
Summary of GINA Title I (Health Insurance) (PDF)
Summary of GINA Title II (Employment) (PDF)
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