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| Genetic Information Nondiscrimination Act (GINA) |
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WHAT'S NEW |
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President Bush signed the Genetic Information Nondiscrimination Act (GINA) of 2008 into law on May 21, 2008. The law makes it illegal for health insurers or employers to discriminate against individuals based on their genetic information.
This site aims to help patients, health care providers, insurers, and employers understand their rights and obligations under the new law. In addition to providing information about the protections afforded under the law, the site will house updates on how federal and state regulators are implementing the law. Members of the public are encouraged to email Center staff with questions, which will be compiled into a frequently-asked-questions Web page.
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The U.S. Equal Employment Opportunity Commission (EEOC) recently
released a Notice of Proposed Rulemaking implementing the employment-related
provisions of the Genetic Information Nondiscrimination Act (GINA). The
Center's law and policy director, Susannah Baruch, provided invited testimony at a public meeting about the proposed regulations. GPPC and the Council for Responsible Genetics also submitted comments to the EEOC on the proposed regulations.
On October 10, 2008, the U.S. Departments of the Treasury, Labor,
and Health and Human Services put out a Request for Information (RFI) to obtain
public comment on the health insurance provisions of GINA. At that time, the Center crafted an extensive analysis and model comments.
After reviewing all submitted comments, on February 20, 2009, the Center
submitted additional comments responding to some of the issued raised by other
stakeholders. The federal agencies have not yet issued a Notice of
Proposed Rulemaking.
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