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Publication announcement: Policies must keep pace with genetic progress
(June 19, 2008)
Enactment of the Genetic Information Nondiscrimination Act of 2008 is a boon for individual patients and for genetic research, write Kathy Hudson and co-authors in the New England Journal of Medicine. But the bill is not a panacea, they note. 

Statement of Director Kathy Hudson regarding announced resignation of NHGRI's Francis Collins
(May 28, 2008)
It is no coincidence that Francis Collins's tenure at the National Human Genome Research Institute marked one of the most extraordinary periods in modern science. 

President Bush signs long-awaited Genetic Information Nondiscrimination Act
(May 21, 2008)
Signed into law today, GINA provides vital protection for Americans against the misuse of genetic test results by heath insurers and employers. 

Publication announcement: Engagement as a dialogue, not a lecture
(May 21, 2008)
In a recent issue of the online magazine Science Progress, Center authors Rick Borchelt and Kathy Hudson outline various modern approaches to engaging the public with science. 

Center to hold personal genomics seminar June 10
(May 15, 2008)
The seminar, "The Molecular Full Monty: Personal Genomes, Personal Health," will take place at the National Press Club at 2:00 pm. 

Genetic Information Nondiscrimination Act passes Senate
(April 24, 2008)
The Senate passed the Genetic Information Nondiscrimination Act unanimously. 

Marketing of unproven tests a threat to public health
(April 03, 2008)
Regulatory action by the FDA and FTC is key to the future of personalized medicine, according to a new paper in the journal Science. 

Center holds town hall meeting in Kansas City
(March 20, 2008)
The Center held its first town hall on genes, environment, and health in Kansas City, MO on March 8. 

GINA passes House for second time this Congress
(March 20, 2008)
On March 5 the text of the Genetic Information Nondiscrimination Act was added to the Paul Wellstone Mental Health and Addiction Equity Act (H.R.1424). The new bill passed the House 268-148. 

Study finds genomic profiling companies' claims lack scientific backing
(March 20, 2008)
An analysis published this month compares nutrigenomic companies' claims with available meta-analyses and finds that most are insufficiently supported by scientific evidence. 

Center to hold town halls on genes, environment, and your health in five U.S. cities
(February 21, 2008)
Town halls will take place on March 8 in Kansas City, MO; April 5 in Phoenix, AZ; April 19 in Jackson, MS; April 24 in Portland, OR; and May 13 in Philadelphia, PA. 

Center probes public opinion on inclusion of children in large-cohort genetic study
(February 06, 2008)
Focus group participants generally agreed that parents should have access to their children's genetic and medical test results during future large-cohort studies on the roles of genes and environment in disease. 

International Law Comparison Tool Now Available
(January 25, 2008)
The Center has added a new resource to its site, a database of laws in 16 countries related to human cloning, human genetic modification, and reproductive genetic modification. 

New Publication - "In Search of a Coherent Framework: Options for FDA Oversight of Genetic Tests"
(January 03, 2008)
The paper offers a comprehensive review of the Food and Drug Administration's efforts in genetic test regulation and presents options for a more active role for the agency going forward.