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Center releases model comments on GINA
(December 03, 2009)
As recently reported in the GPPC newsletter, long-awaited federal regulations implementing the landmark Genetic Information Nondiscrimination Act (GINA) of 2008 are nearly complete, and will go into effect by the end of this year. 

Joan Scott Named Director of Hopkins' Genetics and Public Policy Center
(September 02, 2009)
Johns Hopkins Berman Institute of Bioethics has named Joan Scott, deputy director of its Genetics and Public Policy Center (GPPC), to replace Kathy Hudson as director of the Center.  

Genetics and Public Policy Center receives funding for public consultation project
(August 26, 2009)
The Genetics and Public Policy Center today announced that it was awarded approximately $1.6 million by the National Human Genome Research Institute (NHGRI) to study public attitudes about a possible large U.S. population-based study.  

Center proposes blueprint for genetic test registry
(July 06, 2009)
A new paper argues that a mandatory registry of genetic tests is a crucial first step toward increasing the quality and transparency of genetic testing, and lays out a proposal for implementing such a registry.  

Overhaul of Genetic and Other Advanced Diagnostic Testing Regulations Necessary for Personalized Medicine, HHS Secretary Told
(May 05, 2009)
To "get personalized medicine right," Health and Human Services (HHS) Secretary Sebelius will need to "create and implement a reasonable and responsible regulatory framework" for genetic tests and other advanced medical diagnostics. 

Pew funds Center's new consumer genetics project
(April 20, 2009)
The Pew Charitable Trust has awarded $750,000 to the Genetics and Public Policy Center for a new project focused on consumer protections for applications of genetic testing.  

More data key to guiding future applications of PGD, Baruch writes
(April 20, 2009)
Baruch argues that federal agencies lack the authority and mechanisms to make ethical determinations regarding acceptable uses of preimplantation genetic diagnosis, as well as data on the long-term health and psychological effects of PGD on families.  

FDA gathers feedback on guidance for drug/diagnostic co-development
(April 20, 2009)
The Food and Drug Administration met with drug sponsors and in vitro diagnostics manufacturers in Washington, DC with the goal of identifying the challenges of drug/diagnostic co-development and developing a guidance document on the topic.  

Center releases model comments on GINA-related Notice of Proposed Rulemaking
(April 16, 2009)
The Center, in collaboration with Jeremy Gruber at the Council for Responsible Genetics, has developed model comments in response to the EEOC's proposed regulation. 

Publication Announcement - Veterans likely to support genomic research at VA
(April 09, 2009)
A majority of veterans who receive health care through the Department of Veterans Affairs would likely support and participate in a proposed large-cohort genetic study at the VA, the Center has found. 

EEOC seeks public comment on proposed GINA regulations
(February 25, 2009)
The Center's law and policy director, Susannah Baruch, testified about proposed regulations. 

Hudson: Erroneous vitamin D results should raise red flags for test regulators
(February 20, 2009)
A recent incident illustrates how gaps in the regulatory system for tests - including genetic tests - can wreak havoc on doctors' abilities to effectively treat their patients. 

DOJ begins collecting DNA from federal arrestees and detained immigrants
(February 20, 2009)
DOJ maintains the use of DNA is a logical extension of traditional fingerprinting, stating that "collecting DNA samples at the time of arrest or at another early stage in the criminal justice process can prevent and deter subsequent criminal conduct..." 

Right to post-conviction DNA testing headed to Supreme Court
(February 20, 2009)
The case is expected to determine whether states must permit access to evidence that could potentially demonstrate innocence.  

Center releases report on genetic town hall series
(January 30, 2009)
The Center has released a summary report on a series of five town halls, part of its Public Consultation Project on Genes, Environment, and Health. 

New Scientist teams with GPPC to investigate surreptitious DNA testing
(January 22, 2009)
The Center's analysis forms part of the magazine's lead story in its series, "Who Is Testing Your DNA?" appearing in the January 24 issue. 

EGAPP releases new genetic testing recommendations
(January 21, 2009)
EGAPP investigated tests for tumor expression profiling in patients with breast cancer, UGT1A1 genotyping for metastatic colorectal cancer, and genetic testing for Lynch syndrome mutation in newly diagnosed colorectal cancer patients.