Genetics & Public Policy Center
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Center Bibliography

Articles and Chapters by Center staff:

 

Javitt, G., S. Katsanis, J. Scott, and K. Hudson. 2010. Developing the Blueprint for a Genetic Testing Registry. Public Health Genomics 13(2): 95-105.

 

Murphy, J., J. Scott, D. Kaufman, G. Geller, L. LeRoy, and K. Hudson.  2009. Public perspectives on informed consent for biobanking.  American Journal of Public Health 99.

  

Kaufman, D.J., J. Murphy-Bollinger, J. Scott, and K.L. Hudson. 2009.  Public opinion about the importance of privacy in biobank research. American Journal of Human Genetics 85.

Borchelt, R., and K. Hudson. 2009. Transcending the Public Trust Monologue. In Science Next: Innovation for the Common Good, ed. J. Moreno and R. Weiss. New York: Bellevue Literary Press.

Baruch, S. 2009. Your Genes Aren't Covered For That. Science Progress.

Bubela, T., M.C. Nisbet, R. Borchelt, F. Brunger, et. al. 2009. Science Communication Reconsidered. Nature Biotechnology 27: 514-518.

Borchelt, R. 2009. Book Review: Journalism, Science and Society, by Martin W. Bauer and Massimiano Bucchi (Eds). New York: Routledge, 2007. 286 pp. Science Communication 30: 544-547.

Hudson, K., and G. Javitt. 2009. Regulating laboratory-developed tests. Nature Biotechnology 27: 419 - 420.

Kaufman, D., J. Murphy, L. Erby, K. Hudson, and J. Scott. 2009. Veterans' attitudes regarding a database for genomic research. Genetics in Medicine 11: 329 - 337.

Wideroff, L., Phillips, K.A., Randhawa, G., Ambs, A., Armstrong, K., Bennett, C.L., Brown, M.L., Donaldson, M.S., Follen, M., Goldie, S.J., Hiatt, R.A., Khoury, M.J., Lewis, G., McLeod, H.L., Piper, M., Powell, I., Schrag, D., Schulman, K.A., and J. Scott. 2009. A Health Services Research Agenda for Cellular, Molecular and Genomic Technologies in Cancer Care. Public Health Genomics (publish ahead of print).

Evaluation of Genomic Applications in Practice and Prevention (EGAPP) Working Group. 2009. Recommendations from the EGAPP Working Group: can UGT1A1 genotyping reduce morbidity and mortality in patients with metastatic colorectal cancer treated with irinotecan? Genetics in Medicine 11: 15-20.

Evaluation of Genomic Applications in Practice and Prevention (EGAPP) Working Group. 2009. Recommendations from the EGAPP Working Group: can tumor gene expression profiling improve outcomes in patients with breast cancer? Genetics in Medicine 11: 66-73.

Evaluation of Genomic Applications in Practice and Prevention (EGAPP) Working Group. 2009. Recommendations from the EGAPP Working Group: genetic testing strategies in newly diagnosed individuals with colorectal cancer aimed at reducing morbidity and mortality from Lunch syndrome in relatives. Genetics in Medicine 11: 35-41.

Baruch, S. 2008. Preimplantation Genetic Diagnosis and Parental Preferences: Beyond Deadly Disease. Houston Journal of Health Law & Policy 8: 245-270.

Murphy, J., J. Scott, D. Kaufman, G. Geller, L. LeRoy, and K. Hudson. 2008. Public Expectations for Return of Results from Large-Cohort Genetic Research. American Journal of Bioethics 8: 36-43. (NIHMS76089)

Kaufman, D., J. Murphy, J. Scott, and K. Hudson. 2008. Subjects matter: a survey of public opinions about a large cohort study. Genetics in Medicine 10: 831-839. (PMC Journal - In process)

Hudson, K. 2008. The Health Benefits Of Consumer Genomics: Out With The Old, In With The New. Health Affairs 27: 1612-1615.

Borchelt, R.E. Public relations in science: managing the trust portfolio. In Handbook of Public Communication of Science and Technology, ed. M. Bucchi, and B. Trench, 147-158. New York: Routledge.

Baruch, S., and K. Hudson. 2008. Civilian and Military Genetics: Nondiscrimination Policy in a Post-GINA World. The American Journal of Human Genetics 83: 435-444.

Hogarth, S., G. Javitt, and D. Melzer. 2008. The Current Landscape for Direct-to-Consumer Genetic Testing: Ethical, Legal, and Policy Issues. Annual Review of Genomics and Human Genetics 9: 161-182.

Kalfoglou, A.L., J. Scott, and K. Hudson. 2008. Attitudes about preconception sex selection: a focus group study with Americans. Human Reproduction 23: 2731-2736.

Kaufman, D.J., S.H. Katsanis, G.H. Javitt, J.A. Murphy, J.A. Scott, and K.L. Hudson. 2008. Carrier screening for cystic fibrosis in US genetic testing laboratories: a survey of laboratory directors. Clinical Genetics 74: 367-373.

 

Baruch, S., D.J. Kaufman, and K.L. Hudson. 2008. Preimplantation genetic screening: a survey of in vitro fertilization clinics. Genetics in Medicine 10: 685-690.



Hudson, K.L, M.K. Holohan, and F.S. Collins. 2008. Keeping Pace with the Times — The Genetic Information Nondiscrimination Act of 2008. New England Journal of Medicine 358: 2661-2663.

Hudson, K. 2008. Testing Times for Genomics. Nature 454: 163-164.

Wolf, S.M., et. al. 2008. Managing Incidental Findings in Human Subjects Research: Analysis and Recommendations. Journal of Law Medicine & Ethics 36: 219-248. (PMC2575242)

Baruch, S., D. Kaufman, and K. Hudson. 2008. Genetic Testing of Embryos: Practices and Perspectives of U.S. IVF Clinics. Fertility and Sterility 89: 1053-1058.

Borchelt, R., and K. Hudson. 2008. Engaging the Scientific Community With the Public. Science Progress, Spring/Summer: 78-81.

Katsanis, S.H., G. Javitt, and K. Hudson. 2008. A case study of personalized medicine. Science 320: 53-54.

Kaufman, D., G. Geller, L. LeRoy, J. Murphy, J. Scott, and K. Hudson. 2008. Ethical implications of including children in a large biobank for genetic-epidemiologic research: A qualitative study of public opinion. American Journal of Medical Genetics Part C: Seminars in Medical Genetics 148C: 31–39.

Evaluation of Genomic Applications in Practice and Prevention (EGAPP) Working Group. 2007. Recommendations from the EGAPP working group: testing for cytochrome P450 polymorphisms in adults with nonpsychotic depression treated with selective serotonin reuptake inhibitors. Genetics in Medicine 9: 819-825.

Evans, J.H. and K. Hudson. 2007. Religion and Reproductive Genetics: Beyond Views of Embryonic Life? The Journal for the Scientific Study of Religion 46: 565 -581.

Baruch, S. 2007. Letter to the editor, Hastings Center Report, November-December.

Baruch, S. 2007. Outlawing genetic discrimination. BioNews, May 21.

Hudson K., G. Javitt, W. Burke, and P. Byers. 2007. ASHG Statement* on direct-to-consumer genetic testing in the United States. Obstetrics & Gynecology 110: 1392-1395.

Hudson, K., G. Javitt, W. Burke, and P. Byers. 2007. ASHG Statement on Direct-to-Consumer Genetic Testing in the United States. The American Journal of Human Genetics 81: 635–637.

Hudson, K. 2007. Prohibiting genetic discrimination. New England Journal of Medicine 356(20): 2021-2023.

Javitt, G. and K. Hudson. 2007. The right prescription for personalized genetic medicine. Personalized Medicine 4(2): 115-118.
Crockin, S.L., G.H. Javitt, S. Baruch, and E.M. Bloom. 2006. Genetic tests are testing the law. Trial 42 (10): 44-51.

Daley, G.Q., L. Ahrlund-Richter, J.M. Auerbach, N. Benvenisty, R.A. Charo, G. Chen, H. Deng, et al. 2007. The ISSCR guidelines for human embryonic stem cell research. Science 315 (5812): 603-604.

Hudson, K. 2006. Embryo Biopsy for Stem Cells: Trading Old Problems for New. Hastings Center Report 36 (5): 50-51.

Hudson, K. 2006. Genetic Testing Oversight. 2006. Science, no. 313:1853.

Hudson K., J. Murphy, D. Kaufman, G. Javitt, S. Katsanis, and J. Scott. 2006. Oversight of US Genetic Testing Laboratories. Nature Biotechnology 24 (9): 1083-1090.

Hudson, K., and G. Javitt. 2006. The case for genetic testing oversight. BioNews, August 21.

Hudson, K. 2006. When the past isn't prologue—it's the whole book. Review of Genetic Testing: Care, Consent and Liability, ed. Neil F Sharpe & Ronald F Carter. Nature Genetics 38 (6): 603.

Javitt, G. 2006. Policy Implications of Genetic Testing: Not Just for Geneticists Anymore. Advances in Chronic Kidney Disease 13 (2): 178-182.

Javitt, G. 2006. Pink & Blue? The Need for Genetic Test Regulation Is Black and White. Fertility and Sterility 86 (1): 13-15.

Hudson, K., and G. Javitt. 2006. Federal Neglect: Regulation of Genetic Testing. Issues in Science and Technology, March 22.

Hudson, K. 2006. Preimplantation Genetic Diagnosis: Public Policy and Public Attitudes. Fertility and Sterility 85 (6): 1638-1645.

Hudson, K. 2006. Review of Human Genetic Engineering: A Guide for Activists, Skeptics and The Very Perplexed, by Peter Shanks. Fertility and Sterility 85 (3): 815.

Hudson, K., and G. Javitt. 2006. Personalized Medicine: The ‘Perfect Storm’ for Improving Genetic Test Quality. Research Policy Alert, February 20.

Baruch, S. and K. Hudson. 2006. Central data collection on PGD and screening: Reply. Reproductive BioMedicine Online 12 (3): 390.

Baruch, S. 2006. A Closer Look at Preimplantation Genetic Diagnosis (PGD): New Technology Brings New Pressures on Families. Family Therapy Magazine, January-February, 19.

Scott, J. 2006. Inheritable Genetic Modification: Clinical Applications and Genetic Counseling Considerations. In The Ethics of Inheritable Genetic Modification: A Dividing Line?, ed. J. Rasko, G. O’Sullivan, and R. Ankeny, 223-242. Cambridge: Cambridge University Press.

Baruch, S., G.D. Adamson, J. Cohen, W.E. Gibbons, M.R. Hughes, A. Kuliev, S. Munne, R.W. Rebar, J.L. Simpson, Y. Verlinsky, and K. Hudson. 2005. Genetic testing of embryos: a critical need for data. Reproductive BioMedicine Online 11 (6): 667-670.

Hudson, Kathy. 2005. No airtight case for embryo biopsy. Roll Call, July 20.

Mathews, D.J.H., A. Kalfoglou, and K. Hudson. 2005. Geneticists’ Views on Science Policy Formation and Public Outreach. American Journal of Medical Genetics 137 (2): 161-169.

Kalfoglou, A., J. Scott, and K. Hudson. 2005. PGD patients’ and providers’ attitudes about the use and regulation of PGD. Reproductive BioMedicine Online 11 (4): 486-496.

Kalfoglou, A.L., T. Doksum, B. Bernhardt, G. Geller, L. LeRoy, D.J.H Mathews, J.H. Evans, D. Doukas, N. Reame, J. Scott, and K. Hudson. 2005. Opinions about New Reproductive Genetic Technologies: Hopes and Fears for Our Genetic Future. Fertility and Sterility 83 (6): 1612-1621.

Hudson, K., S. Baruch, and G. Javitt. 2005. Genetic Testing of Human Embryos: Ethical Challenges and Policy Choices. In Expanding Horizons in Bioethics, ed. Arthur Galston and Christiana Peppard, 103-122. Dordrecht: Springer.

Scott, J., and K. Hudson. 2005. Genetic Town Halls: Generating informed opinions about reproductive genetic testing. Professional Ethics Report 18 (1): 1-2.

Hudson, K. 2004. Harms to Future Children. Medical Humanities Review 18 (1): 49-52.

Javitt, G., and K. Hudson. 2004. FDA Regulation of Human Reproductive Cloning: A Technology in Search of a Niche. Food and Drug Law Institute UPDATE, November-December, 34-35.

Hudson, K. 2004. Something Old and Something New. Hastings Center Report 34 (4): 14-15.

Javitt, G., E. Stanley, and K. Hudson. 2004. Direct-to-Consumer Genetic Tests, Government Oversight, and the First Amendment: What the Government Can (and Can't) Do to Protect the Public's Health. Oklahoma Law Review 57:251-302.

Javitt, G., and K. Hudson. 2003. Regulating (for the benefit of) Future Persons: A Different Perspective on FDA's Jurisdiction to Regulate Human Reproductive Cloning. Utah Law Review 4:1201-1229.

Javitt, G. 2003. Reproductive Genetics 1991-2002: A Selected Annotated Bibliography of Genetic Testing, Gene Transfer, and Reproductive Cloning. Journal of Health Care Law and Policy 6: 317-375.

Hudson, K. 2003. A warning that must not be ignored. New Scientist, May 3, 5.

Collins, F.S., L. Weiss, and K. Hudson. 2003. Heredity and Humanity. Ethical Issues in Modern Medicine. 6th ed. Ed. Bonnie Steinbock, John D. Arras, and Alex John. Boston: McGraw-Hill.

Hudson, K. 2003. Incorporating the public's views into research policy. Research USA, June 30.

Hudson, K. 2002. The Human Genome Project: A Public Good. Health Matrix: Journal Of Law-Medicine 12 (2): 367-375.

Hudson, K. 2002. Privacy: Genetic Profiling and Discrimination. American University Law Review 51 (3): 431-450.

Articles commissioned by the Center:
Crockin, S. 2007. Overview of Court Decisions Involving Reproductive Genetics. Washington, DC: Genetics and Public Policy Center, 2007.

Evans, J. 2006. Religious beliefs, perceptions of human suffering and support for reproductive genetic technology. Journal of Health Policy Politics and Law 31 (6): 1047-1074.

Riley, M.F., and R. Merrill. 2005. Regulating reproductive genetics: A review of American bioethics commissions and comparison to the British Human Fertilisation and Embryology Authority. Columbia Science and Technology Law Review 6: 1-64.

Crockin, S.L. 2005. Reproduction, genetics and the law. Reproductive BioMedicine Online 10 (6): 692-704.

Crockin, S.L. 2005. Reproductive genetics: Conceiving new wrongs? Sexuality, Reproduction and Menopause 3 (1): 37-38.

Knoppers, B., and R. Isasi. 2004. Regulatory approaches to reproductive testing. Human Reproduction 19 (12): 2695-2701.

Amos, J., and W. Grody. 2004. Development and integration of molecular genetic tests into clinical practice: the U.S. Experience. Expert Reviews in Molecular Diagnosis 4 (4): 465-477.